
Jennifer (20-y-o niece) heads up to Great Falls today to see a neurosurgeon, the one who diagnosed her. I can't get her off my mind this morning. I'd really like to go with her and my sister, but I don't have anyone to watch the kids, and their noise and activity level can be a bit much. Jenn has Neurofibromatosis Type 2. She's had two brain surgeries, one spinal surgery, and one round of whole-brain radiation. She's having a hell of a time with exhaustion, dizziness, vertigo, and a host of other fun stuff. This doctor hasn't actually treated her, but she's going to see him so she can have someone more local than the admittedly wonderful people in Salt Lake City. If he and the local neuro could handle half of her needs, it would save her a lot of travel. If you need serious medical care in Montana, you mostly go out of state. (Here's a wierd trivia fact: a high number of the Montana patients seeking treatment in SLC are self-immolators.)
On the good news front, she had me take her to the chi-chi hair salon here in town to order a wig. I have to say I fell in instant like with the co-owner, Joe Hrella. We sat, he got her tea, made sure she liked it and it was the right temperature, answered her questions and visited with her like an old friend. He talked to her, not to me -- for which I am so grateful -- some people aren't comfortable talking to someone obviously ill so they talk to her mother or me or whoever is with her. The wig will be here Monday, and if she's up to it we'll go get it fitted.
2 comments:
Hope Olivia's foot is better and shard-free. I'm looking forward to tomorrow with Paul ~ I'm breaking out the Duplo toys. :)
Which one is Joe? I think I had the other guy when I went in for a cut not too long ago. He gave me wings.
In any case, your family is in our prayers.
Joe is the cute blonde. He's married to David. David gave you wings? Not wings to fly, I guess. Yikes. Jenn got a positive report from the doc today in some respects. I'll update her web page tomorrow.
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